18 September 2009

Looking from the outside in...

Before we start, I just want to thank the writers of the CBS show "Criminal Minds". This from the end of the season finale from Season #4. I am paraphrasing the ending monologue that Aaron Hotchner gives.

Sometimes there are no words, no clever quotes to neatly sum up what's happened that day. Sometimes you do everything right, everything exactly right, and still you feel like you failed. Did it need to happen this way? Could something have been done to prevent all of this in the first place? This doesn't just affect me. It affects everyone around me and close to me. From my Mom, who is doing her best to be strong for her "baby" and my Dad who has been the one to keep Mom strong, to my brothers who have both shown in their own way that they want to help but are very limited because of the physical distance between us. There is also Katie's family to consider. This affects them as much as it does my family. They all want to help somehow, but really can't since we are almost 600 miles away. That makes over 30 people in the Greater Cincinnati area, not including extended family and friends who thought things like this only happened to "somebody else" and wouldn't ever touch their lives, only to find out that it is now their turn to be "somebody else".

And what about my family? Not the ones back in Ohio & Kentucky, but my wife and girls. How many more times will the three of them be able to look into the abyss, especially Katie and Emily? Lilli seems to be the least affected. Even though she doesn't really understand everything, she does ask questions and tries her best to help her Daddy when he is sick. Katie and Emily are taking the brunt of the fire and trying to do the things they are not accustomed to doing, but how much longer can they hold out against a relentless enemy that searches out the weakest link of a defense and goes after it mercilessly? How many more times will Katie be able to take my grouchiness and irritability? How much longer can she be both parents without completely losing it on one of the kids when they get out of line or push her buttons too much? What about Emily? This is her Senior year. The year that she is supposed to be able to do more with her friends and have a little bit more freedom, yet she has been saddled with responsibilities that most 17 year olds would walk away from. She is doing the best she can, but chinks can be seen in her armor and it is all starting to wear on her. How much longer will she be able to fight before the monster claims her and what is supposed to be the most fun year of high school? How many more times do my wife and oldest daughter have to stare into the abyss, shoulder burdens neither of them should have to and face down the monster before they won't ever recover the pieces of themselves that this disease silently takes from them?

Like I said, sometimes there are no words, no clever quotes to sum up what's happened that day. Sometimes, the day just... ends.

Yes, I know that this is not the normal "positive" post I normally post, but a night of continuously throwing up and 4 days in the hospital gives you a chance to look at things from a different perspective. Mainly, I got to look at how the stress and pressure of this is wearing very hard on the people around me. Honestly, I don't know how they do it. It has to be hard, especially when I'm in the bathroom retching for no apparent reason or when I get my happy self admitted to the hospital due to extreme dehydration (due to all the throwing up). I see all the stress both Katie and Emily are under and wonder how much longer can they hold up. Honestly, I think Katie will be fine. While we haven't been through anything like this, we have been through the grinder before and emerged just fine, so I think she'll come out on the other end more or less in one piece, but I do wonder what price she is paying to be able to hold up and come out that way. Emily, however, is starting to show signs of wear and tear. There are days where she does what we need her to do and she handles everything great, then there are days where she becomes the stereotypical teenager and just wants to do what she wants and not have anything to do with what is going on at home. I know we are asking alot from her, but I also know that she can handle what we give her. She is her "father's daughter" and she does have that certain "steel in her spine" determination to get things done when they need to get done. She just needs to realize that home needs to come first and everything else will be there when this is over. I am hoping that she can tap that steel and hold on for a little longer before she suffers a big break in her armor.

16 September 2009

Gr. Just Gr.

well.. Ken has been admitted to the hospital for now. The retching just became too much. He needs to be hydrated intravenously, and they will not allow that at home, at least not for now.

So, he's there, probably until at least Friday.

11 September 2009

I guess Misery really likes me...

Not much has changed since Katie's last update. Still exhausted. Still nauseous. Thought the throwing up had stopped, but it reared its ugly head again this afternoon. Yippie. I'm so thrilled. Doesn't my pleasantness shine right through.

I think the only thing that keeps me from going completely stark raving insane is the fact the treatments are almost done. I am telling you, Sept 30th cannot get here fast enough. I am so tired of feeling this way. I want it over and I want it over now. But, we all know I don't get what I want so I'm just going to have to wait for the 30th to get here.

Oh well, I guess that's it. There's nothing really much else to write about so I'm signing off. Until next time people. *waves*


I'm on the downhill side, that's what keeps me looking up.

07 September 2009

I wish it was "still the same"...

Nausea has stepped up, and the um.. emesis (throwing up...) is worse. A Lot. Not in quantity, just every time he stands up, it seems, something triggers, and he's back standing over the toilet. I've tried Emetrol for him. Not doing a WHOLE lot of good. *IF* he were eating, it may be worse.. not sure.

Voice is shot, from the throwing up, and the radiation...

I know it's selfish of me.. but MAN, October can't get here soon enough. It's bad enough to watch all this happening.. and knowing I can't take any of it away for him. But it seems like no help I offer even touches any of what is happening... I just hope that after the treatments are finished, the side effects abate quickly....

04 September 2009

Still the same...

He's still exhausted, still nauseated.
still losing a pound here and there,but the dietician does not seem too concerned.
Radiation has made him look like he has the best tan of his life, at least form the shoulders up.
But his lips are cracking, and peeling.

(I hate to say this.. but I wish I could get him to get the aquaphor on his lips, and salt water gargle.. but there are SO many other things to have to do...)