18 September 2009

Looking from the outside in...

Before we start, I just want to thank the writers of the CBS show "Criminal Minds". This from the end of the season finale from Season #4. I am paraphrasing the ending monologue that Aaron Hotchner gives.

Sometimes there are no words, no clever quotes to neatly sum up what's happened that day. Sometimes you do everything right, everything exactly right, and still you feel like you failed. Did it need to happen this way? Could something have been done to prevent all of this in the first place? This doesn't just affect me. It affects everyone around me and close to me. From my Mom, who is doing her best to be strong for her "baby" and my Dad who has been the one to keep Mom strong, to my brothers who have both shown in their own way that they want to help but are very limited because of the physical distance between us. There is also Katie's family to consider. This affects them as much as it does my family. They all want to help somehow, but really can't since we are almost 600 miles away. That makes over 30 people in the Greater Cincinnati area, not including extended family and friends who thought things like this only happened to "somebody else" and wouldn't ever touch their lives, only to find out that it is now their turn to be "somebody else".

And what about my family? Not the ones back in Ohio & Kentucky, but my wife and girls. How many more times will the three of them be able to look into the abyss, especially Katie and Emily? Lilli seems to be the least affected. Even though she doesn't really understand everything, she does ask questions and tries her best to help her Daddy when he is sick. Katie and Emily are taking the brunt of the fire and trying to do the things they are not accustomed to doing, but how much longer can they hold out against a relentless enemy that searches out the weakest link of a defense and goes after it mercilessly? How many more times will Katie be able to take my grouchiness and irritability? How much longer can she be both parents without completely losing it on one of the kids when they get out of line or push her buttons too much? What about Emily? This is her Senior year. The year that she is supposed to be able to do more with her friends and have a little bit more freedom, yet she has been saddled with responsibilities that most 17 year olds would walk away from. She is doing the best she can, but chinks can be seen in her armor and it is all starting to wear on her. How much longer will she be able to fight before the monster claims her and what is supposed to be the most fun year of high school? How many more times do my wife and oldest daughter have to stare into the abyss, shoulder burdens neither of them should have to and face down the monster before they won't ever recover the pieces of themselves that this disease silently takes from them?

Like I said, sometimes there are no words, no clever quotes to sum up what's happened that day. Sometimes, the day just... ends.

Yes, I know that this is not the normal "positive" post I normally post, but a night of continuously throwing up and 4 days in the hospital gives you a chance to look at things from a different perspective. Mainly, I got to look at how the stress and pressure of this is wearing very hard on the people around me. Honestly, I don't know how they do it. It has to be hard, especially when I'm in the bathroom retching for no apparent reason or when I get my happy self admitted to the hospital due to extreme dehydration (due to all the throwing up). I see all the stress both Katie and Emily are under and wonder how much longer can they hold up. Honestly, I think Katie will be fine. While we haven't been through anything like this, we have been through the grinder before and emerged just fine, so I think she'll come out on the other end more or less in one piece, but I do wonder what price she is paying to be able to hold up and come out that way. Emily, however, is starting to show signs of wear and tear. There are days where she does what we need her to do and she handles everything great, then there are days where she becomes the stereotypical teenager and just wants to do what she wants and not have anything to do with what is going on at home. I know we are asking alot from her, but I also know that she can handle what we give her. She is her "father's daughter" and she does have that certain "steel in her spine" determination to get things done when they need to get done. She just needs to realize that home needs to come first and everything else will be there when this is over. I am hoping that she can tap that steel and hold on for a little longer before she suffers a big break in her armor.

6 comments:

Pat Moning said...

Dear Ken,

You seem to know how all of this is wearing on both Katie & Emily. I just wish you didn't have to go through this & that they didn't either.
I am going to call Emily today (I already talk to Katie every day). I doubt that the call will help her very much but I hope to try to let her know that Grandpa & I both appreciate everything she does for you & Katie.
I sincerely hope that this is the last really bad episode you have with this & that the time flies by now that you are near the end of your treatments. I can only imagine what has been like & hope I NEVER have to go through what you are going through. Hang in there & as I tell Katie all the time "this too shall pass".

Unknown said...

Ken
after last september, i have come to under stand that a day is a gift. so hang in there. a day is never just over it is a sweet victory,for you and all of those in your life.
catch ya later.
Uncle Skeeter

Dani said...

Ken,
You are one of the strongest people I know. And I know you will get through this. I can only try to imagine what hell you and Katie and the girls are going through. And I am certain it is just that. Absolute hell. You have stayed so positive through it all...but it would be unreasonable to expect ANYONE (even the strongest of people) to endure what you have and not feel like you are in an abyss, and not be able to see your way out. But you will! Only 2 more weeks, although I'm sure that seems like an eternity, and it will be over. I look at you, Katie and the girls and think if this was me or Kevin how would we do it? Well, I can only hope that I could face it and handle it just the way you are. With such courage, and strength and determination. You are an incredible inspiration to us. And to everyone here. We love you! Try to hang in there, Ken!

Love,
Dani, Kevin, Bailey and Andrew

Katie said...

Dani,

Sadly, two weeks only means his treatments are done. Because of the toxic nature of the medicine for chemo, and the effects of the radiation, side effects are called "cumulative". What that means is.. it will still get worse before it gets better.

It took a few weeks for his body to react to the poison, and it will continue to reacted in a delayed manner for a few weeks after.. THEN it will SLOWLY start to get better. It's just that burning question of "when? How long?" And why does it take so much longer o get better, than it idid to get sick?

Like kids.. it would be SO great if this whole thing came with an instruction manuel, and a magic wand for caretakers.

Jerri said...

Ken, Katie, and kids:

It's easier said than done, but try to keep focused on the end goal of being cancer free, and each day brings you closer to that goal. I can't begin to imagine what you are all going through, but I do believe that are all stronger as individuals and as a family. I think it's awesome how you have all had such positive attitudes and strength through this whole process and admire your strength.

MGySgt Charles K. Duncan USMC Ret said...

Hello Ken, Katie, Emily, and Lilly;

The spirit of the Ballinger family is inspirational to us and serves to remind all of us that every family has it's trial and tribulations. Your fortitude as a family has and will continue to provide strength through this most difficult time. I have provided updates to your Young Marine Family that you served so well. Semper Fi, Marine